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Services Provided

 

Noah’s Children’s interdisciplinary team of physicians, nurses, social workers, spiritual-care givers, and volunteers work together to create a comprehensive plan of care. We provide palliative care to families who are still seeking curative treatments as well as those who need comfort care and symptom management. We use a combination of therapies to comfort and support children, family members, and others in the child’s life. We aim to fulfill our goals with sensitivity toward our patients and their families’ personal, developmental, cultural, and religious values, beliefs, and practices.

Noah’s Children offers the following supports:

  • Clinical Care Coordination - At home or in the hospital, our interdisciplinary team will work to plan and coordinate an effective, safe, and comfort-driven plan of care.

  • Education - Often families don’t know where to turn for answers after receiving their child’s diagnosis and many come to rely on the internet as a source for information. The team offers a relational give-and-take of information that facilitates the integration of facts with confusing questions and feelings.

  • Perinatal Palliative Care - We serve parents whose unborn child has been diagnosed with a life-threatening condition.

  • Spiritual Care - Living with a seriously ill child brings out the spiritual struggles and strengths of all involved – patients, family, friends and even the staff.  We provide spiritual care that is respectful of the families’ personal, cultural, and spiritual beliefs and practices.

  • Family and Sibling Support - We understand that to help a sick child, we must also help the entire family. Our goal is to increase a family’s memories without imposing on them, so we offer a number of family and sibling support programs.

    • Sibshops- Studies have shown and siblings of special needs children have reported depression, isolation, fear, lack of support, and at times resentment towards parents and siblings. These findings suggest that siblings of special needs children are a vulnerable group in need of programs and services that support them. The Sibshop curriculum is a national curriculum providing siblings with peer support and information in a lively, recreational setting. Sibshops are offered quarterly and currently at no cost to the families.

    • Parent Support Group- A nine-month hybrid (in-person and virtual) peer support group for bereaved families. The group offers support for families up to three years after the loss.

  • Social Work - Our social work services aim to reduce stress and enhance your family’s quality of life. Just as no two families or situations are the same, the social services offered are custom-tailored to each family’s individual needs.

  • Grief and Bereavement Support - Children and adults often are overwhelmed by serious illness or loss and may exhibit varying degrees of confusion, anxiety, and helplessness. We deliver bereavement services through a companioning model.

  • Music Therapy-Music Therapy is the clinical & and evidence-based use of music interventions to accomplish individualized Music therapy interventions can address a variety of healthcare and educational goals to promote wellness, alleviate pain, express feelings, improve communication, and promote physical rehabilitation. In-home or virtual music therapy is offered to Noah’s Children patients. 

  • Family Support Services and Events-families enrolled in Noah’s Children receive the following additional benefits and support services.

    • Family Events-Family events are designed for families with medically fragile children with the goal of providing normalcy, connection, and fun in an accommodating community environment with other families sharing similar experiences, needs, and understanding.

      • Holiday Party

      • Mother’s Day and Father’s Day Program

      • Parents’ Night Out

      • Pool Party

      • Sibling Day Out

      • Summer Outings

      • Back-to-School Supplies

         

    • Holiday and Birthday Support -Birthdays and holidays are milestones for children with life-limiting and life-threatening illnesses. Birthdays and holidays are celebrated with items purchased from the wish lists of patients, families, and siblings.

      • Birthday Club

      •   Easter Baskets

      •   Holiday Adoption

      • Thanksgiving Meals

      • Valentine’s Day

    • Hospital Boxes- Families with medically fragile children have frequent medical appointments, hospital visits, and extended hospital stays. Noah’s Children Hospital boxes offer personal and self-care items, gift cards for meals, and an encouraging card from our Kids Helping Kids program.

    • Meals- After a long day of doctor visits, homework, housework, and caring for children, living in rural areas with a food desert, there is little to no energy or resources to prepare a nutritious meal.  The meals program provides this opportunity monthly with catered meals and store-bought meals selected by families.